This month we are supporting the Rett Syndrome Association of Australia (RSAA).
Formed in Melbourne in July 1989 RSAA is a not-for-profit organisation which is managed by a Committee of volunteers, most of whom are parents of Rett syndrome children. The Association seeks to enrich the quality of life for persons with the syndrome and their families,
The outlook for Rett syndrome individuals is not all doom and gloom. Even though the condition is such that most will need lots of help to get through each day, some independent skills associated with eating, drinking, toileting and/or dressing, can be learnt. Communication is particularly important as there is strong desire on their part to interact with those around them, despite their lack of expressive language and impaired hand use.
Females with Rett syndrome have greater receptive language (i.e., what they hear and understand) than expressive language (speech). It is important for them that the activity and/or content of a conversation involves something that they find very stimulating. Communication methods vary considerably among the Rett syndrome population.
For more information on this condition go to the Associations Webpage http://www.rettaustralia.com/
Join us now and help us to help these kids & their parents - a minimum donation equivalent to just $1.00 pw will help make a difference. TOGETHER WE CAN MAKE A BIGGER DIFFERENCE! Larger donations are of course always welcome. All donations of $2.00 or more are fully tax deductable. Take action and go to the DONATE NOW tab